Friday, September 29, 2017

Hudson's busy September

Hudson has had a busy month and we want to share all about his many adventures!  We are still waiting for cooler temps ;)

Speech is going well.  His vocabulary is expanding and his newest words include shoes, bear, avocado, drink and please (when prompted!)  His favorite thing right now is "carrrrrs".  Anything with wheels is a car to him and his therapist is encouraging us to work on deciphering among car/truck/bus/boat/etc.  So far it's just "carrrrr"!

He has had several medical appointments this month.  His routine ophthalmology follow up went well.  His vision is still great and there have been no big changes.  For now we will continue to monitor and we will patch his left eye two hours per day in hopes of forcing his non dominant (right) eye to strengthen.

We visited Scottish Rite Hospital for the first time.  The primary referral was for orthopedics.  This Spring we confirmed that his left hip is dislocated which causes there to be a significant leg length discrepancy.  The doctor says that nothing will be done about that but that they will keep an eye on the dorsiflexion in his right foot.   We also met with a developmental pediatrician as well as several sweet therapists who fell in love with him :)  After their brief examination they gifted him with a new teddy bear and toy "carrrrr"!  Before we left they encouraged us to visit their orthotics department who graciously allowed us to rent this stander for a year.  He already has the hang of it and it allows him so much freedom and independence!  We also have stationary stander ordered which will allow us the convenience of keeping one stander to school next Fall.

He was molded for a new set of AFOs!  Sure Step seems like the most quality brand so we requested those this time!  We chose a dinosaur pattern since he is really into "dinos" these days!

We met our friend Oliver at the zoo one morning.  These two enjoyed rolling around together!

He has attended numerous football games and does so well!  Here is our sweet little bear cub cheering on the Baylor bears!

One afternoon we visited the Magnolia Silos to grab cupcakes.  He enjoyed swinging with his favorite brother and sister.  What a lucky guy :)

Friday, September 15, 2017

Hudson is 2.5!

Hudman is two-and-a-half and is sweet as can be :)  He now weighs 27 lbs 4 oz, measures 30.62" long and has a head circumference of 19.12".  He wears size 5 diapers, size 3T clothes and just got his 20th pearly white! 

On 8/13 he enjoyed his first skate!  Our church children's program hosted a 'back to school' night at the local skating rink and he had his own wheels in which to participate! 

He still does PT and OT weekly and works hard to accomplish new goals and skills.  He also recently started speech twice a week.  He loves to stop and visit the fish ("nosh") on the way out each time.

He is a lucky dude to have two helpful siblings who love him like crazy!  They are both his favorites :)  Soon after this photo was taken we found our own similar train table at a garage sale bargain price!  It is a great height for his chair. 

Once upon a time a friendly Starbucks employee offered him whipped cream in a tiny sample cup.  From then on he expects one each time I get a drink at the Target Starbucks.  Silly boy!

Our guy is a great eater and sleeper!  He loves life and brings joy to many.  He especially likes hats, fish, "carrrrrs", books, baths, and dancing. 

He is doing a great job at using his wheelchair.  So far we have taken it to church, medical appointments and the children's museum.  He enjoys exploring on a new level!  He makes new friends everywhere we go.  Many people are impressed to see such a cute little guy maneuvering around so well.  

He loves playing with tracks and automobiles.  He is becoming more vocal and his little personality is coming out!

Monday, September 11, 2017

SBANT Walk-n-Roll 2017

Thanks to the overwhelming love and support of friends and family (aka "Hudson's Heroes") our first SBANT "Walk-N-Roll" was a huge success!!  We sold 187 team shirts, donated over $1,300 and participated to raise awareness of the Spina Bifida community.

Smith super kids :)

"Sometimes, real superheroes live in the hearts of small children fighting big battles."

Smith party of 5!

We are honored that so many family members joined us to walk.  Thank you from the bottom of our hearts :) 

"A HERO is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles." -Christopher Reeve

Monday, August 21, 2017

First day of school 2017

Happy first day of school to the big kids!! 

Emma is in 5th grade!!  She rotates classes this year and is enjoying music class this first six weeks.  We decorated her first locker!  She is really enjoying the new level of independence that comes with intermediate school.  Her teachers are wonderful and we are anticipating a wonderful year :)

Dad and Owen are helping her set the lock ;)

Mrs Kimmel is Emma's homeroom teacher and seems wonderful!  She is also her Science teacher and of course E was super excited to discover that she has turtles as classroom pets :)  

Treats for our wonderful teachers!

Our silly second grader did not make early morning photos easy!  He was so ready to get back to school and start a routine. 

Little brother had to get in on the action!  Next Fall he will start Preschool!

Ms Wilton is Owen's homeroom teacher and seems great!  She called the day before "Meet the Teacher" and introduced herself to him.  She loves the kiddos :)

Praying for an amazing school year full of learning, growing and sharing Jesus through our actions!

Wednesday, August 16, 2017

A morning at the Mayborn museum

Before the big kids headed off to school we visited the Mayborn museum.  They enjoyed visiting the traveling Speed (science in motion) exhibit.  This was really the first place with wide open spaces that we brought Hudson's wheels along.  He was such a big boy and zoomed around making new little friends and exploring!

The train was definitely a favorite and he enjoyed watching it go around the track!

Owen especially enjoyed the Science room upstairs.

Hudson loves magnets!


Hello pretty girl!  She loved this mirror!

Hudson has such a love/hate relationship with this buffalo!  He has been scared of it in the past but wheeled full speed toward it.  As soon as he got close he freaked out (but soon made friends with it and seemed so interested in it). 

Making music!

Since this day Hudson has been very interested in "carrrrrrs"!  He has since inherited Owen's old set of wooden tracks and automobiles.

These two enjoyed racing at the Speed exhibit!  They were both so helpful and impressed that Hudson wheeled around so independently :)

Friday, July 21, 2017

{A not so!} Terrible Parable

The big kids enjoyed another week of Music & Arts camp at Highland!  They enjoyed art, Legos, rhythm, puppets, hip hop, ballet, choir and more!  What a wonderful program!  Ms Lawyer Barrister and my handsome soloist did a great job performing "A Not so Terrible Parable", the mysterious whodunit about the Good Samaritan.    

A pleasantly uneventful visit

In June we made the trip to Texas Children's for an annual check up with Dr. Whitehead, Hudson's neurosurgeon.  We think a lot of Dr W - he is world renowned and is the one who performed H's lengthy spinal surgery on day two of life.  It was Dr Whitehead who told me very early on to "just treat Hudson like a typical kiddo because that's exactly what he is!" and he was absolutely right :) 

We actually hadn't seen Dr W in a year and a half - which is a good and bad thing.  Good because it meant Hudson was doing great but bad because we had to visit with residents at our last couple of appointments who were totally lame (haha). 

Upon arrival we grabbed lunch in the food court.  Soooo many emotions ran through my mind since that is where we ate lunch every single day during Hudson's NICU stay.  It was almost surreal to have him there with us sitting in a high chair happily stuffing Chick fil A nuggets in his mouth ;)  After lunch we loaded the elevator and headed upward to the sixteenth floor of the clinical care building and checked in. 

We waited...and waited...and waited some more.  Hudson enjoyed army crawling around, flirting with fellow patients and admiring the tall buildings out the window.  Over an hour had passed and I finally touched base the receptionist.  She called his nurse who came out and informed us that Dr W had been called into emergency surgery and would be awhile. 

We decided to walk the halls of the hospital and asked them to call us when he was ready.  This is the sky bridge which connects TCH to the Women's center.  If I had a dollar for the number of times we walked this route back and forth during March 2015.....well, you know the rest!  :)

We went back down to the third floor and enjoyed Starbucks and visited the fish.  Hudson is REALLY into fish/aquariums these days {and calls them "nosh"}! 

Little man enjoyed a few sips of frappe before it was time to return to the sixteenth floor.

The visit with Dr W went well.  We were a little surprised that an MRI and imaging was not ordered this time and learned that it won't be unless there is as specific concern down the road.  Dr W is always kind and patient enough to answer my list of questions {oh yes, I take a long list!}  He is incredibly brilliant yet is always good at explaining things to us.  He said that Hudson looks terrific!  His head circumference is growing perfectly and there are zero signs of hydrocephalus.  Cheers for a pleasantly uneventful visit - those are the ones we really like!! 

On our way out we made a few more familiar stops.  We walked by both NICU levels, the Ronald McDonald house and the main hospital cafeteria.  Hudson enjoyed visiting the Choo Choo Hut on the first floor.  He loved pushing the button and watching the train move around the tracks. 

And here is a photo of proud big brother and sister at the same place the week Hudson was born :)